|What do I need? Where do I start?|
During our twenty-one years of dealing with disability, people have taken really good care of our family. So I have hesitated to share today's post, thinking that it may make us appear ungrateful.
Believe me, we appreciate every good thought, prayer, and action taken on our behalf over the years. We are truly thankful for the caring people who surround us.
1. "Let me know if there's anything you need."
On any given day, I pretty much need everything: rest, hope, money, respite, the weeds pulled in my flower garden. But I'm not likely to call you anytime soon. Our situation has taken so much of our dignity over the years, I just can't ask anyone for more. It's hard to always be the ones in need, so I will probably politely thank you and leave it at that.
I also know that most of our friends and family would gladly help out if they knew what to do. A great way to really assist your caregiver friend is to not wait for that phone call.
Just do something.
Don't worry if it's the right thing. They'll love you for trying, even if it's not really what they needed. Instead of a vague offer of help, pick out something specific and do it. For example, you can ask, "What is your favorite pizza and would Thursday night be a good time to drop it off for you? Or, "I'm thinking of weed eating a few weeds this weekend. Could you use an hour of weed whacking around your yard, too?" Drop off a deli tray or a plate of brownies. Stick a prepaid card in the mail for a meal at a restaurant that does takeout or curbside pickup.
Once when our son was being released from the hospital after suffering a particularly bad infection, a friend dropped off a gallon of milk, toilet paper, and a take-and-bake pizza. She didn't stay long, because she knew we were exhausted. And the pizza could be refrigerated until we were ready to cook it. What an awesome and thoughtful thing to do.
Recently, I had out-patient surgery. Two of my dear friends, who know that I can't ask for help, took charge. Because my husband had to keep up the caregiving at home, one friend drove me to the hospital, waited while I had the procedure, and drove me home. She also brought food for the frig. After I returned home, another friend babysat me for the afternoon while I rested. She brought food, too. I can't begin to tell you how much these two did to ease my recovery and restore my soul.
Helping out a caregiver doesn't have to be expensive, involved, or time-consuming. Just the fact that you took the time to reach out is healing to a family scoured out by overwork and sorrow. Sometimes that can be achieved by simply sending a card in the mail to let them know you're thinking of them or a Facebook message of encouragement.
2. "Be sure to take care of yourself."
Um, okay. I'm trying. But who will do my job for me while I get that pedicure?
Believe me, caregivers know that they need to take care of themselves. But most day, theys are too busy just keeping their heads above water as they are swept down Urgent River. It's like telling a drowning person to take time for himself. He can't do that. He's busy drowning. What he needs is to be pulled to safety, not a haircut.
A great alternative would be, once again, to put feet to your concern. See number one for ideas. Anything you can do to relieve some of the caregivers' burdens can give them a chance to find time for themselves.
You can also ensure that a caregiver is pampered by pampering her yourself. Soon after our disabled son returned home after his accident, a group of my friends threw me a shower at a friend's house. We ate together, they washed my feet, and they showered me with gifts. After all the weeks of standing beside our son as he fought for his life, I had almost forgotten how to do anything but exist in pain. The gift of an afternoon with my precious friends reminded me how wonderful it is to be alive.
3. "You should get out more"
This one is right up there with the previous comment. Obviously, if we could get out more, we would. Caregivers are not only too busy, they are often too tired to keep up much of a social life. This is part of the sacrifice they willingly make to serve their loved one. They understand what they are giving up, and they are willing to do it, which may seem incomprehensible to others.
Once an acquaintance who loves to cook insisted on preparing a multi-course dinner for us at our house. He even wore a chef's uniform and served us as we sat around the table and took in the wonder of it all. The meal rivaled anything we could have ordered at a restaurant.